Parry Romberg Syndrome Information Page
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What is Parry Romberg?
Is there any treatment?
What is the prognosis?
What is Parry Romberg?
Parry-Romberg syndrome is a rare disorder characterized by atrophy (wasting away) of the tissue on one side of the face. The atrophy may also affect the tongue, soft palate, and mucous membranes of the gums. Muscle and bones are rarely affected. The eye and cheek of the affected side may become sunken. In some cases, pain may occur and facial hair may turn white and fall out. Some individuals with this disorder may experience migraine-like headaches, trigeminal neuralgia, or seizures which originate from the opposite side of the body.
Is there any treatment?
There is no treatment to stop the progression of Parry-Romberg syndrome. Reconstructive or microvascular surgery may be needed. Muscle or bone grafts may also be helpful. Other treatment is symptomatic and supportive.
What is the prognosis?
The prognosis for individuals with Parry-Romberg syndrome varies. In some cases, the atrophy stops before the entire face is affected. In mild cases, the disorder usually causes no disability other than the cosmetic effects.
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